Project Title: Moving to Breathe, Breathing to Move: A study on the benefits of choral singing and dance for people with neuromuscular conditions.
Sponsors: Muscular Dystrophy Canada, MITACS
Principal Investigator: Danielle Peers, PhD (Assistant Professor), firstname.lastname@example.org
Co-Investigators: Janice Richman-Eisenstat, MD (Clinical Associate Professor) Kelvin Jones, PhD (Associate Professor)
Hernish Acharya, MD (Associate Clinical Professor)
Research Assistants & Instructors:
Lindsay Eales (Certified Occupational Therapist, Doctoral Candidate, Integrated Dance Specialist)
Kelsie Acton (Doctoral Candidate, Integrated Dance Specialist)
Aidan Toth (Master's student in rehabilitation sciences)
Susan Farrell (Choir instructor, Artistic Director Braille Tones)
Purpose: A research project studying the benefits of singing and dancing programs on breathing, quality of life, and quality of leisure for people with neuromuscular conditions.
Background: Taking part in group activities like singing and dancing helps people to express their creative side as well as having many physical and mental health benefits. These opportunities are not often made for people with neuromuscular conditions. We do not know the potential benefits to breathing and quality of life that might come from taking part in these kinds of programs.
Participants: People with neuromuscular conditions, who are at least 14 years old. You may bring someone not in the study to sing or dance with you. If you are interested in joining, you can download the information letter, with all of the information on what to expect here, or you can contact Danielle Peers directly.
When: 16 weeks between March and June, 2018.
-Session A: Fridays 3:00 pm to 5:00 pm (starting March 9th)
-Session B: Thursdays 5:30pm to 7:30pm (starting March 8th)
*session B will be added pending numbers and scheduling needs of participants
Where: Capital Care Norwood
10410 111 Ave NW, Edmonton, AB T5G 3A2
in the Auditorium (just inside front doors to left)
Investigators: Danielle Peers and Timothy Konoval
Funding: SSHRC Insight Development Grant
In this two-year project, we are creating a database of websites from all of the disabiltiy sport programs in Canada. We will use these websites to identity which policies, rules, procedures, programs and discourses may serve to encourage the participation of certain people who experience disability while detering or disqualifying others. We hope to identify: 1) groups of people who are underserved by the entire disability sport system; 2) some of the most significant-yet-changeable barriers to participation; 3) examples of programs that are creatively addressing these barriers.
Inclusive movement programs have been internationally championed as a basic right of people with disabilities, and a vehicle for their broader social inclusion (United Nations, 2008). The Canadian Government (2013) has responded with claims about the existing inclusivity of its movement programs, in particular, disability sport. These claims, however, contradicts Statistics Canada’s report that only 3% of people with disabilities have regular access to organized sport (Canadian Paralympic Committee, 2013). The problem at the heart of this research is that celebratory accounts of our inclusivity can stop academics and practitioners from critically engaging with the discourses, practices, and structures of our movement programs, which seem to be systemically discouraging, marginalizing, or outright excluding the large majority of people who experience disability in Canada.
Knowledge Translation Outcomes: